Aubree's band Appt.
We went for her band eval today and he wants us to aggressively reposition her for the next ten days (what do you think I've been trying since two weeks old?) and then come back for a remeasure!!!!!!!!! What... How could she really change in ten days? She measured 8 mm in assymetrical difference and when Grayson was evaluated he was a 9 and they didn't think twice about banding him...So as of right now she has another evaluation on the 21st and her band will be ready on Feb. 9th if she is getting one. It's not like I want her to get one, I just know NOW is the only time her assymmetry can be fixed! So one dr. appt down this week two more to go.
Grayson's Speech:
We went for his evaluation a few weeks ago and the speech pathologist put him on a 12 month level and wanted to see him (in Pineville) twice a week for 30 minute sessions... ughhhhh! Even though he can say some words, he didn't speak one for her. We checked with our insurance and we would have to pay our $50 copay every time we walked through the door!!!! So $100 a week!!!!!!!!!!!! That is insane, since we have very good insurance. I remembered a friend of mine that was in the same boat last year and found free services through Meck. county Early Intervention. I called her and started to pursue that route. I finally got to talk with the intake lady and she set everything up. We just had our initial visit this past week and in talking with my service coordinator we came up with some possible answers... Grayson doesn't chew his food completely and he was tounge tied at birth, so she is thinking his mouth/tongue muscles may be weak and that he needs the thingy under his tongue clipped! Lovely! We have a appt. with the ENT on Wednesday and he has his hearing/vision screening on Tuesday. I am just living at the doctors this week. In the next few weeks he will have his evaluation with EI and then we will go from there. The good thing about EI is that they come to our home... where else would he be more comfortable talking but in his own environment............. If you've made it this far, thanks for reading! More updates to come!
We went for her band eval today and he wants us to aggressively reposition her for the next ten days (what do you think I've been trying since two weeks old?) and then come back for a remeasure!!!!!!!!! What... How could she really change in ten days? She measured 8 mm in assymetrical difference and when Grayson was evaluated he was a 9 and they didn't think twice about banding him...So as of right now she has another evaluation on the 21st and her band will be ready on Feb. 9th if she is getting one. It's not like I want her to get one, I just know NOW is the only time her assymmetry can be fixed! So one dr. appt down this week two more to go.
Grayson's Speech:
We went for his evaluation a few weeks ago and the speech pathologist put him on a 12 month level and wanted to see him (in Pineville) twice a week for 30 minute sessions... ughhhhh! Even though he can say some words, he didn't speak one for her. We checked with our insurance and we would have to pay our $50 copay every time we walked through the door!!!! So $100 a week!!!!!!!!!!!! That is insane, since we have very good insurance. I remembered a friend of mine that was in the same boat last year and found free services through Meck. county Early Intervention. I called her and started to pursue that route. I finally got to talk with the intake lady and she set everything up. We just had our initial visit this past week and in talking with my service coordinator we came up with some possible answers... Grayson doesn't chew his food completely and he was tounge tied at birth, so she is thinking his mouth/tongue muscles may be weak and that he needs the thingy under his tongue clipped! Lovely! We have a appt. with the ENT on Wednesday and he has his hearing/vision screening on Tuesday. I am just living at the doctors this week. In the next few weeks he will have his evaluation with EI and then we will go from there. The good thing about EI is that they come to our home... where else would he be more comfortable talking but in his own environment............. If you've made it this far, thanks for reading! More updates to come!
7 comments:
We had a WONDERFUL experience with Meck county's EI. They'll take great care of you, and for a price that can't be beat :) Can't wait to hear the updates!
I agree with Megan. We dealt with EI a lot, ever since we moved to Charlotte. Ty received speech, PT, and OT. We did PT the most because the other two didn't work out so well for us personally. Anyway, now that Ty is 3 his services are through CMS. He's getting Speech at preschool. They pay for both. I feel pretty lucky. (Not that I'm happy he NEEDS any special help.) Regarding the band, I'm not sure what they're waiting for. Isn't is strange how doctors can do things so differently? Best of luck with everything.
We had to go to the therapist for Brady because he refused to walk. After the first visit it all clicked and he started walking. Now...talking is a different story. He turned 3 in December and just started talking. He doesn't stop! He is on his own schedule. I hope it just "clicks" for Grayson like it did for Brady. Maybe he just needs to have something to say!
brody was tongue tied too and they clipped him the day he was born! was grayson clipped at birth?? anyway, it sounds like things are moving in the right direction for both babies! i miss seeing you!
A week full of doctor visits...no fun!! I hope everything works out for both Grayson and Aubree :)
I hate to hear Aubree's visit didn't go as planned! Hopefully things will all work out for both of them soon!
Sorry you are living at the doctors this week. Sounds like they are silly delaying Aubree's band when they should know you have done all you can to correct it on your own. Glad you are not having to go to speech twice a week. What a pain! Spencer had his tongue clipped the first week. Maybe that will help him...or maybe they will find something else that will work. He's just being your stubborn little boy. Gotta love them! Take care and have patience :)
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